EXPERIENCES OF COUPLES CARING FOR A CHILD BORN WITH CLEFT LIP AND/OR PALATE: IMPACT OF THE TIMING OF DIAGNOSIS

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Tarih

2017-01

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Yayıncı

WILEY

Erişim Hakkı

info:eu-repo/semantics/openAccess

Özet

Raising a child born with cleft lip and/or palate (CL/P) can be challenging for parents. Few researchers have examined how having a child born with CL/P impacts couples. The purpose of this descriptive qualitative study was to examine how a child's CL/P diagnosis affects couples' relational adjustment and coping. We conducted interviews with 17 couples (10 prenatal and seven postnatal) caring for children born with CL/P. After conducting thematic content analysis, six overarching themes emerged: (a) relationship growth, (b) challenges, (c) roles and responsibilities, (d) sources of support, (e) talking about cleft, and (f) lessons learned. Findings suggest that couples should be routinely assessed for psychosocial issues and prevention programs should be tailored to preexisting stressors and timing of the diagnosis.

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Anahtar Kelimeler

Kaynak

JOURNAL OF MARITAL AND FAMILY THERAPY

WoS Q Değeri

Q2

Scopus Q Değeri

Q2

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