Caregiver support and burden drive intention to engage in a peer-to-peer exchange of services among caregivers of dementia patients

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dc.WoS.categoriesPsychiatryen_US
dc.authorid0000-0002-3512-296Xen_US
dc.contributor.authorAksin, Zeynep Öz
dc.contributor.authorBilgiç, Başar
dc.contributor.authorGüner, Perihan
dc.date.accessioned2023-09-21T06:58:36Z
dc.date.available2023-09-21T06:58:36Z
dc.date.issued2023-07-06
dc.description.abstractIntroductionThe number of people diagnosed with dementia is increasing, creating significant economic burden globally. With the progression of the disease, patients need a caregiver whose wellbeing is important for continuous care. Providing respite as a service, through sharing the responsibility of caregiving or support for the caregiver, is a costly initiative. A peer-to-peer online support platform for dementia caregivers, motivated by the sharing economy, putting exchange of knowhow, resources, and services at its center, has the potential to balance cost concerns with a search for respite. The aim of this research is to assess caregivers' intention to engage in peer-to-peer exchange. MethodsA survey including sociodemographic, technology use, and caregiving variables, structured questionnaires (Zarit caregiver burden, WHO brief quality of life scale, ADCS-ADL and chronic stress scale) were administered, January 2018-May 2019, in the dementia outpatient clinic of a university hospital, to a convenience sample of n = 203 individuals identifying themselves as primary caregivers. A path analysis exploring the drivers of an intention to engage in peer-to-peer service exchange was conducted. ResultsIn the path model, caregivers experiencing higher caregiver burden showed higher intention to engage (0.079, p < 0.001). Disease stage had no effect while patient activities of daily living, chronic social role related stressors of the caregiver and general quality of life were significant for the effect on the caregiver burden. Existing household support decreased the caregiver burden, affecting the intention to engage. Caregivers who can share more know-how demonstrate a higher intention to engage (0.579, p = 0.021). Caregiver technology affinity (0.458, p = 0.004) and ability and openness to seek professional help for psychological diagnoses (1.595, p = 0.012) also increased intention to engage. ConclusionThe model shows caregiver burden to be a major driver, along with caregiver characteristics that reflect their technology affinity and openness to the idea of general reciprocity. Existing support for obtaining knowhow and exchanging empathy have a direct effect on the intention to engage. Given the scarcity of caregiver support in the formal care channels, the identified potential of enlarging informal support via a peer-to-peer exchange mechanism holds promise.en_US
dc.fullTextLevelFull Texten_US
dc.identifier.doi10.3389/fpsyt.2023.1208594en_US
dc.identifier.issn1664-0640
dc.identifier.pmid37484665en_US
dc.identifier.scopus2-s2.0-85165167144en_US
dc.identifier.urihttps://hdl.handle.net/11411/5199
dc.identifier.urihttps://doi.org/10.3389/fpsyt.2023.1208594
dc.identifier.wosWOS:001032474900001en_US
dc.identifier.wosqualityQ2en_US
dc.indekslendigikaynakWeb of Scienceen_US
dc.indekslendigikaynakScopusen_US
dc.indekslendigikaynakPubMeden_US
dc.language.isoenen_US
dc.nationalInternationalen_US
dc.numberofauthors8en_US
dc.publisherFRONTIERS MEDIA SAen_US
dc.relation.ispartofFRONTIERS IN PSYCHIATRYen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/openAccessen_US
dc.subjectFAMILY CAREGIVERSen_US
dc.subjectINFORMAL CAREGIVERSen_US
dc.subjectSELF-EFFICACYen_US
dc.subjectHEALTHen_US
dc.subjectACCEPTANCEen_US
dc.subjectTECHNOLOGYen_US
dc.subjectRESPITEen_US
dc.subjectECONOMYen_US
dc.subjectSYSTEMSen_US
dc.subjectTIMEen_US
dc.titleCaregiver support and burden drive intention to engage in a peer-to-peer exchange of services among caregivers of dementia patientsen_US
dc.typeArticleen_US
dc.volume14en_US

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